TY - JOUR
T1 - Updated Psychosocial Surveys With Continuous Glucose Monitoring Items for Youth With Type 1 Diabetes and Their Caregivers
AU - Shapira, Amit
AU - Chen, Charlotte W.
AU - Volkening, Lisa K.
AU - Laffel, Lori M.
N1 - Publisher Copyright:
© 2023 Diabetes Technology Society.
PY - 2023
Y1 - 2023
N2 - Aim: We added items relevant to continuous glucose monitoring (CGM) to the Diabetes Family Conflict Scale (DFC), Diabetes Family Responsibility Questionnaire (DFR), and Blood Glucose Monitoring Communication Questionnaire (GMC) and evaluated the psychometric properties of the updated surveys. Research Design and Methods: Youth with type 1 diabetes who recently started CGM and their parents completed the updated surveys and additional psychosocial surveys. Medical data were collected from self-reports and review of the medical record. Results: Youth (N = 114, 49% adolescent girls) were aged 13.3 ± 2.7 years and had mean glycated hemoglobin (HbA1c) 7.9 ± 0.9%; 87% of them used pump therapy. The updated surveys demonstrated high internal consistency (DFC youth: α =.91, parent: α =.81; DFR youth: α =.88, parent: α =.93; and GMC youth: α =.88, parent: α =.86). Higher youth and parent DFC scores (more diabetes-specific family conflict) and GMC scores (more negative affect related to glucose monitoring) were associated with more youth and parent depressive symptoms (r = 0.28-0.60, P ≤.003), more diabetes burden (r = 0.31-0.71, P ≤.0009), more state anxiety (r = 0.24 to r = 0.46, P ≤.01), and lower youth quality of life (r = −0.29 to −0.50, P ≤.002). Higher youth and parent DFR scores (more parent involvement in diabetes management) were associated with younger youth age (youth: r = −0.76, P <.0001; parent: r = −0.81, P <.0001) and more frequent blood glucose monitoring (youth: r = 0.27, P =.003; parent: r = 0.35, P =.0002). Conclusions: The updated DFC, DFR, and GMC surveys maintain good psychometric properties. The addition of CGM items expands the relevance of these surveys for youth with type 1 diabetes who are using CGM and other diabetes technologies.
AB - Aim: We added items relevant to continuous glucose monitoring (CGM) to the Diabetes Family Conflict Scale (DFC), Diabetes Family Responsibility Questionnaire (DFR), and Blood Glucose Monitoring Communication Questionnaire (GMC) and evaluated the psychometric properties of the updated surveys. Research Design and Methods: Youth with type 1 diabetes who recently started CGM and their parents completed the updated surveys and additional psychosocial surveys. Medical data were collected from self-reports and review of the medical record. Results: Youth (N = 114, 49% adolescent girls) were aged 13.3 ± 2.7 years and had mean glycated hemoglobin (HbA1c) 7.9 ± 0.9%; 87% of them used pump therapy. The updated surveys demonstrated high internal consistency (DFC youth: α =.91, parent: α =.81; DFR youth: α =.88, parent: α =.93; and GMC youth: α =.88, parent: α =.86). Higher youth and parent DFC scores (more diabetes-specific family conflict) and GMC scores (more negative affect related to glucose monitoring) were associated with more youth and parent depressive symptoms (r = 0.28-0.60, P ≤.003), more diabetes burden (r = 0.31-0.71, P ≤.0009), more state anxiety (r = 0.24 to r = 0.46, P ≤.01), and lower youth quality of life (r = −0.29 to −0.50, P ≤.002). Higher youth and parent DFR scores (more parent involvement in diabetes management) were associated with younger youth age (youth: r = −0.76, P <.0001; parent: r = −0.81, P <.0001) and more frequent blood glucose monitoring (youth: r = 0.27, P =.003; parent: r = 0.35, P =.0002). Conclusions: The updated DFC, DFR, and GMC surveys maintain good psychometric properties. The addition of CGM items expands the relevance of these surveys for youth with type 1 diabetes who are using CGM and other diabetes technologies.
KW - CGM
KW - psychosocial surveys
KW - type 1 diabetes
KW - youth
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U2 - 10.1177/19322968231159411
DO - 10.1177/19322968231159411
M3 - Article
C2 - 36912009
AN - SCOPUS:85150700146
SN - 1932-2968
JO - Journal of Diabetes Science and Technology
JF - Journal of Diabetes Science and Technology
ER -