Heart failure in children: Priorities and approach of the ACTION collaborative

Neha Bansal, Danielle S. Burstein, Angela Lorts, Lauren Smyth, David N. Rosenthal, David M. Peng

Research output: Contribution to journalArticlepeer-review

6 Scopus citations

Abstract

Despite significant advances in the medical field, pediatric heart failure continues to have a significant health burden. ACTION (Advanced Cardiac Therapies Improving Outcomes Network) was formed to bring the benefits of a learning health system to the problems of pediatric heart failure and VAD care. The ACTION learning collaborative network has expanded its focus to incorporate quality improvement initiatives aimed at improving outcomes in pediatric heart failure. The multiple initiatives include a collaboration with the Pediatric Health Information System (PHIS) database, timely referral for heart failure management in Fontan patients, formation of a waitlist outcomes committee, and a heart failure management committee with numerous parent and provider education initiatives.

Original languageEnglish (US)
Article number101313
JournalProgress in Pediatric Cardiology
Volume59
DOIs
StatePublished - Dec 2020

Keywords

  • Heart failure
  • Pediatrics
  • Quality improvement

ASJC Scopus subject areas

  • Pediatrics, Perinatology, and Child Health
  • Cardiology and Cardiovascular Medicine

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