Developing a measure to assess attitudes toward epilepsy in the US population

Colleen A. DiIorio; Rosemarie Kobau; E. Wayne Holden; Judith M. Berkowitz; Stephanie L. Kamin; Richard F. Antonak; Joan K. Austin; Gus A. Baker; Laurie J. Bauman; Frank Gilliam; David J. Thurman; Patricia H. Price

doi:10.1016/j.yebeh.2004.08.020

Developing a measure to assess attitudes toward epilepsy in the US population

Colleen A. DiIorio, Rosemarie Kobau, E. Wayne Holden, Judith M. Berkowitz, Stephanie L. Kamin, Richard F. Antonak, Joan K. Austin, Gus A. Baker, Laurie J. Bauman, Frank Gilliam, David J. Thurman, Patricia H. Price

Pediatrics

Research output: Contribution to journal › Article › peer-review

50 Scopus citations

Abstract

The aim of this study was to develop an instrument to measure the US public's attitudes toward people with epilepsy and to assess the initial reliability and validity of the instrument. A 46-item attitudinal instrument was developed and tested using a proportional, stratified, national, random-digit dial household telephone survey of adults aged ≥ 18 (n = 758). Exploratory factor analyses revealed four underlying constructs that accounted for 34.4% of the variance in the factor analysis: Negative stereotypes (α = 0.73); risk and safety concerns (α = 0.85); work and role expectations (α = 0.76); and personal fear and social avoidance (α = 0.79). Knowledge was also assessed; participants with less knowledge about epilepsy had more negative attitudes. The results of these analyses provided evidence for reliability and construct validity of the instrument. Additional tests of the reliability, validity, and factor structure of the scales are necessary to refine the instrument.

Original language	English (US)
Pages (from-to)	965-975
Number of pages	11
Journal	Epilepsy and Behavior
Volume	5
Issue number	6
DOIs	https://doi.org/10.1016/j.yebeh.2004.08.020
State	Published - Dec 2004

Keywords

Attitude assessment
Epilepsy
Knowledge assessment
Scale development
Stigma

ASJC Scopus subject areas

Neurology
Clinical Neurology
Behavioral Neuroscience

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10.1016/j.yebeh.2004.08.020

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title = "Developing a measure to assess attitudes toward epilepsy in the US population",

abstract = "The aim of this study was to develop an instrument to measure the US public's attitudes toward people with epilepsy and to assess the initial reliability and validity of the instrument. A 46-item attitudinal instrument was developed and tested using a proportional, stratified, national, random-digit dial household telephone survey of adults aged ≥ 18 (n = 758). Exploratory factor analyses revealed four underlying constructs that accounted for 34.4% of the variance in the factor analysis: Negative stereotypes (α = 0.73); risk and safety concerns (α = 0.85); work and role expectations (α = 0.76); and personal fear and social avoidance (α = 0.79). Knowledge was also assessed; participants with less knowledge about epilepsy had more negative attitudes. The results of these analyses provided evidence for reliability and construct validity of the instrument. Additional tests of the reliability, validity, and factor structure of the scales are necessary to refine the instrument.",

keywords = "Attitude assessment, Epilepsy, Knowledge assessment, Scale development, Stigma",

author = "DiIorio, {Colleen A.} and Rosemarie Kobau and Holden, {E. Wayne} and Berkowitz, {Judith M.} and Kamin, {Stephanie L.} and Antonak, {Richard F.} and Austin, {Joan K.} and Baker, {Gus A.} and Bauman, {Laurie J.} and Frank Gilliam and Thurman, {David J.} and Price, {Patricia H.}",

note = "Funding Information: This research was supported by the Centers for Disease Control and Prevention, Contract 200199900018 (E-18), Task Order 6, to ORC Macro. The authors acknowledge the contributions of Dr. Lynda Anderson and Dr. Daniel Kidder at the Centers for Disease Control and Prevention, and Ms. Amy Chadwick, Ms. Qinghong Liao, and Dr. Robert Stephens at ORC Macro. ",

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language = "English (US)",

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AU - Kobau, Rosemarie

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AU - Berkowitz, Judith M.

AU - Kamin, Stephanie L.

AU - Antonak, Richard F.

AU - Austin, Joan K.

AU - Baker, Gus A.

AU - Bauman, Laurie J.

AU - Gilliam, Frank

AU - Thurman, David J.

AU - Price, Patricia H.

N1 - Funding Information: This research was supported by the Centers for Disease Control and Prevention, Contract 200199900018 (E-18), Task Order 6, to ORC Macro. The authors acknowledge the contributions of Dr. Lynda Anderson and Dr. Daniel Kidder at the Centers for Disease Control and Prevention, and Ms. Amy Chadwick, Ms. Qinghong Liao, and Dr. Robert Stephens at ORC Macro.

PY - 2004/12

Y1 - 2004/12

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Developing a measure to assess attitudes toward epilepsy in the US population

Abstract

Keywords

ASJC Scopus subject areas

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