A Multi-Centered Case-Control Study of Vitiligo Support Groups and Quality of Life

Zoë I. Smith, Jason F. Wang, Nada Elbuluk, Richard H. Huggins, Mathew R. Birnbaum, Alexandra Rzepecki, Bhavnit K. Bhatia, Christina Kratschmer, Beth McLellan, Allison Kutner

Research output: Contribution to journalArticlepeer-review

3 Scopus citations


Background: There is limited research on the association between vitiligo support group membership and patient quality of life (QoL) Objectives: To explore the association between support groups and QoL in those with vitiligo by evaluating and comparing the QoL o vitiligo support group members and non-support group members. Methods: Support group members (n=135) and non-support group members (n=129) were recruited from the Global Vitiligo Foundatio (GVF), and three academic medical centers respectively.Patients completed the Vitiligo-Specific Quality of Life (VitiQoL) instrument an a demographic survey. Results: Mean VitiQoL scores for support group members were higher than non-support group members (48.6 ± 23.6 vs 33.0 ± 23.8 P-value < 0.0001), highlighting more negatively impacted QoL. Support group members were less likely to be undergoing treatmen (27.4% vs 53.5%; P-value = <0.0001) and were more likely to report duration of vitiligo for >20 years (38.5% vs 19.4%; P-value 0.0007). Conclusions: Vitiligo support group membership is associated with worse QoL. Individuals with vitiligo who have worse QoL, chronic and/or untreated vitiligo may be more likely to seek out vitiligo support groups. Support group referral should be considered in th therapeutic management of vitiligo, particularly in patients Dowhose Not QoL Copy is more significantly impacted, who fail, or are without acces to treatment, or have longstanding disease.

Original languageEnglish (US)
Pages (from-to)672-675
Number of pages4
JournalJournal of Drugs in Dermatology
Issue number6
StatePublished - Jun 2021

ASJC Scopus subject areas

  • General Medicine


Dive into the research topics of 'A Multi-Centered Case-Control Study of Vitiligo Support Groups and Quality of Life'. Together they form a unique fingerprint.

Cite this